STAYING THE COURSE, SHIFTING THE EMPHASIS: THE BLIND IN THE 1990'S by Gary Wunder From the Editor: Gary Wunder is the President of the Missouri affiliate and a leader at every level of the National Federation of the Blind. In November of 1993 he was the national representative at the NFB of Ohio convention, and the banquet address he delivered still has those who heard it thinking and talking about it. Here is what he said: This past weekend I had the good fortune to work with ninety high school and college students who attended one of our seminars to learn about the skills which would benefit them in their education. The name of the event was Student Network, and it was jointly hosted by Missouri's state agency, Rehabilitation Services for the Blind, and the National Federation of the Blind of Missouri. In general terms, they pay; we present--a nice arrangement, and one which they encourage. The reactions we get from students are almost uniformly positive. They are quick to say they appreciate our time; think our speaking is at least passible, if not entertaining; are encouraged by our accomplishments; and say they would attend the next Network should we decide to have one. Interspersed with this praise, however, are statements like the following: We would like to hear more from students; we spend too much time listening to old people. Sometimes I think the presenters are too rigid; it is as though they think they know all the answers. I wish you'd talk more about problems and how you solved them and less about philosophy and life. Then there is the all-important request: "Tell us more about how we can get our own Braille 'n Speaks and computers." Since we ask for the evaluations in an attempt to improve our program, we have to wrestle with ways to keep the good while incorporating the criticisms in something positive. The difficulty we face is one which buffets us everyday as Federationists, workers, parents, and members of American society. How can we convey the meaningful values which have made us what we are, while at the same time recognizing the changes that have taken place between the past we describe and the present we occupy as we speak? In more concrete terms, how do we stress the importance of old-fashioned educational values without telling that worn-out story about walking seven miles to school each day in snow up to our hips? All of this preamble leads me to what I want to talk about tonight--the changes which have occurred in recent decades for blind people, the ways in which we have brought about these changes, and our current role in this new reality. Even though our history reveals a change in emphasis from decade to decade, never have we lost the vision which brings continuity to it all: our vision of a world in which the blind are treated as normal, capable people who simply do not see, a vision of a world in which every blind person can have a job, a family, and a valued place in his or her community. When we began our movement over fifty years ago, our first task was to establish a means of subsistence-level support for the blind. Most blind people in 1940 lived with family members and had no means of self-support. As long as their care and support were the responsibility of relatives, they would continue to be treated like children and would likely regard themselves as inferiors, lesser beings whose thoughts and opinions were of little significance. Our work then was to provide a monthly state payment for the blind, and this we were successful in securing. After a minimal income was provided by law, our next job was to see that blind people got training. Not only was it necessary to learn the skills of blindness that would allow for independent travel and self-care, but additional academic and job skill training would be required if the blind were to secure employment. At first the training we received was minimal and rarely adequate, but each year saw new victories, and hope grew as the blind of that generation witnessed the changes. Once we had won the right to an education and some training, our emphasis shifted once again, and we turned our attention toward changing the attitudes of a skeptical public who simply did not believe the blind could work and make a contribution to society. In the fifties you will remember our struggles with the Civil Service, our demand that we be given the right to take tests, our demand that our test scores be posted, our demand that we be interviewed when our test scores were competitive, and finally our demand that we be hired when we were the most qualified candidates available. Through this lengthy and at times frustrating process, we continued to do what we had always done for one another--reminding ourselves that we truly were competent human beings. At times we had our doubts, for few were those who believed as we did. Each day we hoped and dreamed, sharing with our blind cohorts our little triumphs and defeats, clinging to the progress of each of our brothers and sisters as proof of the rightness of our belief in ourselves. Throughout the sixties and seventies we did much in the legislatures of the land to provide basic civil rights protection for the blind. White Cane laws soon declared that blind people could travel where we wished with our canes and our dog guides. Landlords could not deny us a place to live or charge us more to live in their establishments. Public transportation systems were not only obliged to permit us to ride but were compelled to make reasonable accommodations for us such as announcing stops and giving us the name of the route the bus was traveling. Restaurants were ordered to seat and serve us without regard to our use of a dog guide, and even insurance companies were compelled to review their policies regarding the sale of insurance to the blind, being required to justify any higher rate by statistically demonstrating that we were a greater risk than others. This, of course, they could not do. Having made substantial gains in securing basic civil rights protection, our emphasis gradually shifted, and the seventies and eighties witnessed landmark legislation designed to assure that we would be considered for jobs in the public sector without regard to our blindness. Many of us found work as a result of amendments to the Federal Vocational Rehabilitation Act of 1973 and some state laws which were similar in intent. We found, of course, that legislation was not enough. A major portion of our energy and funding was given to enforcing the laws we had introduced and passed, and reports of successful court challenges were a major staple in our annual presidential reports, our banquet speeches, and our governmental affairs activities. In the nineties there is little I have mentioned that cannot still be found in the work we do. We continue to press for a guaranteed and adequate income for the blind, for quality affordable housing, and for the special programs which teach the skills and attitudes required to function independently as blind people. We still take problems which the blind of the nation bring, and these often result in administrative challenges, arbitration hearings, and court battles. You will have noticed, however, that, as our message becomes ever more widely accepted and our legal protection more firmly secured by precedent, these issues appear with some less frequency than they did in the past. What then is our major task to fulfill in the 1990's? I believe it is to strengthen the confidence our brothers and sisters have in themselves so that they are able and willing to risk the possibility of failure on the chance of success. We must deepen the faith we have come to feel in one another so that it extends beyond faith in our power as a body and fills those areas of our lives where doubt or contentment with the status quo now resides. Let me turn for a moment from this abstract discussion of the challenges which face us to share with you a few specific examples which concern me, because of what they illustrate in the way of changes we must address. I have been a member of the Federation for twenty years, and in that time have listened to and worked on behalf of many people who have had grievances against the education and rehabilitation establishments. Often in my early years the conflicts came about because the rehabilitation counselor simply didn't believe that a blind person could do what the client insisted he had the right to try. Often there were elements of custodial treatment which also aggravated the situation, and in most instances the blind people pressing their cases were supremely qualified to do what they wanted to do. This didn't mean that winning was easy or that the victories were always everything we wanted, but it did mean that every advance brought us that much closer to enjoying true equality with the sighted. In the last few years I have seen a change in the kinds of issues brought to us for resolution. Let me give you two examples I find disturbing. Jim is a man who would like to get his Ph.D. in educational administration and work as a high school principal or superintendent. He came to us when it appeared he would be denied admission to graduate school. He was interested in discussing with me the problems blind people have when taking tests administered by the Educational Testing Service. When tests are administered under nonstandard conditions such as with the use of readers or Braille or the provision of additional time, the ETS sends with a blind person's test score a letter noting that it cannot say with certainty just what the score means. Our concern about this disclaimer is that it may be used to diminish the learning indicated by our scores. Jim asked that I note our long- standing objections to this attachment in a letter he might use before the graduate admissions board, and this I did. When Jim came to me several weeks later to ask that we hire an attorney to help him sue the university for its denial of his request to enter the graduate program, I did a little research so that I would have a better understanding of his case and could decide how we should be involved. In denying Jim admission to its degree program, the school gave four reasons: (1) his high school and undergraduate grades were too poor for admission, (2) his grades while in graduate school on a trial basis were mediocre, (3) he did not have teaching experience, and (4) his Graduate Record Exam scores were far too low. The school argued that it had tried to be flexible in evaluating Jim as a candidate for a degree and that it had tried to take into account the special problems which might be faced by people who are blind. It argued that it had admitted Jim provisionally, without first requiring him to take the GRE; that it had overlooked his lack of work experience in the field; and that it had been willing to put aside Jim's poor performance in high school and college and was prepared to judge him on his work in graduate school. The school further argued that it had attempted to accommodate Jim in taking the GRE, that initially accommodation had been refused, and that later it had been accepted and provided. In short, the school argued that it could have overlooked any one of Jim's shortcomings and admitted him, but that the cumulative record simply went beyond reasonable accommodation. Jim argued that his high school and college grades were poor because at the time he was sighted and did not take school as seriously as he would have had he been blind. He said his lack of job experience should be obvious, for blind people just could not find employment in the public schools. With regard to his GRE scores, Jim argued that he was disadvantaged the first time he took the test by the failure of those who administered it to provide him with accommodation--a reader. His second score, he said, was not a reflection of his true ability specifically because of his accommodation--a reader. Jim said that he was not accustomed to taking tests with readers and that this should invalidate his score. In short, the school should understand that he was a blind man and abandon trying to give him the test altogether since there was obviously no good way to measure what he knew. After talking with Jim and members of the department which rejected him, I suggested that his lack of the skills of blindness played a real role in his lack of success and that we could help. He had argued that discrimination caused by blindness kept him from getting teaching experience. I gave him the name of Tom Ley, a math teacher in Louisiana, and Fred Schroeder, a former teacher and the current Director of the New Mexico Commission for the Blind. I discussed with him the possibility of getting training at a center; learning to use readers, magnifiers, and Braille; requesting mobility training; and brushing up on academic skills to improve his test scores and overall performance in school. In the end, Jim had no interest in anything I said and made it clear that he was angered by what he viewed as interference. Jim hotly told me that he was interested in information pertaining to discriminatory treatment by the Educational Testing Service and nothing more. Blindness meant all requirements and standards should be waived. The law was on his side, and he'd use that law with or without us. Never mind the test scores, the grades, the experience, or the skill deficits. He wasn't interested in any of it. The test scores were indicative of nothing. The value of having experience as a teacher before becoming a school administrator was not important either. He wanted what he wanted, and if blindness provided an avenue to further his complaint, then that's the road he would travel. Forget the training that would make him truly competitive and equal. That would take too long. What he wanted was admission to school, and he wanted it now and without unsolicited interference. He had defined our role, and now we should function within the boundaries he had set. We refused to take part, but he persists. About this same time I was contacted by a woman I will call Ardith. Ardith said that she was a writer of plays and movies and that she had been working on her productions since 1987. She wanted our help because she needed a loan for word-processing equipment. She said she had requested the equipment from Missouri's Rehabilitation Services for the Blind without results. She complained about being thwarted by the bureaucracy, about the rehab establishment's lack of faith in the blind, and about the way in which these poor excuses for public servants were robbing the world of good entertainment and robbing her of a lucrative livelihood. Now I've been a Federationist long enough to know when it's my turn to come on stage, so recognizing my cue, I began encouraging her and planning how I would present her case to the Director of Rehab Services. Just as a precaution--being a middle- aged rather than a very young and inexperienced Federationist--I asked if I might see something she had written. I said that, while I was no authority on what was or was not a good play, I knew one person who would be glad to review her work for me and share with both of us her opinion of its worth. Ardith's response was slow in coming, but eventually she said, "Well, maybe I could show you something, but I wouldn't want you or anyone else to steal it, so I'll have to get it copyrighted first. Okay?" Then she said that I'd have to overlook any misspellings, problems with grammar, and mistakes in typing. That, of course, was because she didn't have a word processor. Then I asked the really tough question: has anyone expressed an interest in your work, offered you any money, or performed one of your plays? I asked it with a bit more tact than I've shown here, but the answer was an insulted "no," as though that really didn't matter. Again I did some research, still prepared to get my exercise by beating on Rehab if I needed to, but thinking at this point that a little caution might be in order. I learned that Ardith's relationship with Rehab was a long-standing one and that her case had been closed following her pronouncement that her counselor should go straight to hell. Okay, Ardith might lack something in tact, but how could a Federation leader be upset by someone spirited enough to tell off Rehab? Then I discovered that Ardith's request for a word processor had been greeted with enthusiasm, the counselor having feared that there was nothing Ardith was interested in pursuing. Knowing that Ardith had no word processing skills, and feeling that something besides Ardith's declared intention to be a writer should appear in the file as justification, the counselor presented Ardith with two options, either of which Rehab would fund. One option was to go for a one-month evaluation at a rehab center where Ardith could use many different kinds of adaptive equipment and choose which device best suited her. The evaluation could also be used to determine her aptitude as a writer, and the recommendations of the rehab staff and Ardith's own preferences would result in the purchase of a talking word processor. The second option for Ardith was to enroll for a semester as a student at the university near her home. She could take an English class and use the equipment in the Student Services labs; and at the end of the semester, provided she passed, the equipment she wanted would be delivered. When I called Ardith to talk with her about what I'd been told, I fully expected to hear that the counselor had exaggerated the offer she had actually made or that in presenting it she had been rude or short or negative. Ardith, however, made no such accusations. She confirmed, in fact, that these were the options she had been given but said she found both totally unacceptable. I asked her why, and she said she had no obligation to prove herself to anybody. She further said she didn't have time to waste going for a month to a center and thought she'd get very little out of spending a semester in a university class. "You have to understand," she said, "that I'm very busy here trying to get out my made-for-television movie. I just don't have time to screw with them. Now let's talk about a loan from the Federation." All of you who are here tonight know how strongly we feel about the need to serve the blind and to be advocates for those in need. Our role in standing up for blind people and fighting against the agencies is well known. For a long time, if someone had asked me what the primary work of the Federation was, with great enthusiasm I would have said it was to defend the blind individual against the custodial, stingy, and patronizing professionals who work with them. While from time to time we certainly do find ourselves in these situations, today they are the exception rather than the rule, and with ever-increasing frequency we find the agencies and the organized blind working together to create opportunities and change lives. What I want for myself and others who are blind is a chance to compete. I want people to listen and discuss with us the accommodations we need, but I don't expect them to throw away the standards they use in determining what it takes to do the job competitively. If their job descriptions say "must be able to read," rather than "must be able to understand written material," then we ought to be ready for a fight. If a training program denies a blind person access because they say he cannot draw flow charts, even though he can write an efficient computer program, then we ought to champion his case. Our task in the 90's is to get blind people to look not only at the forces allied against us in the pursuit of a home, a job, and a family, but to look at the opposite side of the coin and recognize with equal attention those forces we have rallied in support of our ambitions. When Dr. Jernigan presented his paper, "Blindness: Handicap or Characteristic," he challenged us to look upon blindness as only one of many characteristics that make us what we are. He demonstrated that some characteristics are positive, some negative, and others neutral, depending on what it is we wish to do. If most of us had been given the choice, we would not have elected to be blind; but given that we are, what problems and possibilities does this characteristic present? What group's members today in American society can receive a monthly maintenance check while attending college with books and tuition paid by the Government? What group can request and receive special equipment simply by expressing the intention to use it in pursuing employment? Having won through the law so much of what we have sought, we must now shift our emphasis from what society must do for us to what we as blind people can do for ourselves. It is critical that we understand what the organization we have created can and cannot do for us. Organizations are well equipped to spotlight a problem, to bring injustice to the attention of the public, and to work collectively to remove the barriers that block whole classes of people from full participation. We can march together, united in our demand that the colleges and universities of America let us in. We can mobilize the anger of the public in fighting the injustice that exists when a qualified blind woman is denied a place in the classroom. What we cannot do is accompany her into her freshman composition class and ensure through our collective action that she will do the work competitively. We can articulate the injustice which exists when a blind man is denied participation in his chosen field of study because some administrator mistakenly believes the sciences to be off-limits for the blind. What we cannot do is ensure that the blind man seeking entrance to an electrical engineering program will have developed the Braille skills that will enable him efficiently to take notes, manipulate equations, and communicate his answers to an anxious professor. Our challenge in this decade is to use the incomes we have been provided to advance, and not merely to exist. We must take advantage of the educational resources placed at our disposal, not simply as a method of planning the way we will spend the next four or five years, but as a means to provide our own support. When we elect to attend a technical school or an institution of higher learning, we must do so with the clear intention of pursuing a career once the training is complete. The agreement we make with our fellow Americans is not a God-given right which we accept without obligation. By our acceptance of training, we are agreeing to make the task of finding a job our first priority, meaning that we will not place so many artificial restrictions and conditions on our prospective employment that we never find a job we think we want to do. How many unemployed sighted people can argue that they turned down a $15,000-a-year job because it would require a move? How many out- of-work sighted people could turn down a $25,000 job because they felt it just wasn't worth the trouble? How many sighted people without a job could turn down work because commuting took an hour each way and just didn't seem worth the bother? I have personally helped blind people find entry-level jobs, only to have them tell me they rejected the job offer because they didn't have time to start at the bottom. Where do they believe most people make their entry into the work force? But, of course, this question really misses the point because the real issue is not inconvenience or even economics, but confidence. As an organization we can do much when those who oppose us tell us no; but when we reach the point where society says yes, it must be the individual who goes forth to take advantage of the rights we have secured. Can he proceed in the knowledge that others have gone before? Can she work to win a degree, confident that we will stand by her should she encounter discrimination when she looks for her first job? Can the blind graduate move to another town, knowing that he is one of many who have dared to live independently, the protection of family and friends being hundreds of miles distant? The answer to these questions is yes, but the choice to risk must be made by the individual, and only through the positive choices of individuals can we remain strong. Having said all of this, am I making the case that the world is now an easy place in which to be blind and that the only barriers standing between us and first-class citizenship are issues of individual choice? No. As long as there are more sighted people than blind ones in the world, we will have special problems with which we must cope, and we will always have need of our organization to solve problems requiring collective action. Am I saying that everyone here is capable, if he or she decides to do so, of going out of this room and getting an education and a job? No, I am not, for nothing I can say will undo the scarring some of us have endured, and no matter how hard it is to admit, for some of us it is too late. Our job as Federationists is to do many things for many different people, and no one prescription will serve us all in this task. Some Federationists desperately need our honest assessment of their strengths and weaknesses. Some Federationists need our encouragement as they undertake this painful assessment themselves. Some Federationists deserve our understanding of where they have been and of the life experiences which have placed them where they are. All Federationists, ladies and gentlemen, can benefit from two things we can give in abundance: love and hope. These two ingredients have bound us together for more than fifty years, and they will continue to unify and strengthen us through the 90's and through the many decades to come. As we celebrate our past and embrace our future, let us rededicate ourselves this evening to the work which has brought us to this place. When we do, there is no force on earth which can stand against us. I would like to leave you with a thought from Ralph Waldo Emerson which I find both inspirational and instructive: "There is a time in every man's education when he arrives at the conviction that envy is ignorance; that imitation is suicide; that he must take himself for better or worse as his portion; that though the wise universe is full of good, no kernel of nourishing corn can come to him but through his toil bestowed on that plot of ground which is given him to till. The power which resides in him is new in nature, and none but he knows what that is which he can do, nor does he know until he has tried."